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Surgery Looming

This happy guy is due for surgery soon. Yes, the dreaded "S" word. No, not the midface advancement that we were expecting to do next. We had a plan in mind and Jack has been doing fantabulous or so we...

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A Season of Hold Me, Squeeze Me, Be Near Me

As far as I can remember, every mother of grown children I have ever spoken to at length has, at some point, mentioned "seasons" or "phases" or "stages" that they and their children went through....

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Questions? I've got answers.

Some people are....what word am I looking for?....well, some people just wonder things or speculate on them without ever asking and other people just come right out and ask them. Here are some answers...

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Quarantine Has Begun

It's been over 3 (nearly 4) glorious years since we've had to do this. It feels like unfamiliar territory. Well it is, really. Jack was only 3 years old last time he had surgery and that last one was...

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Morning Maestro

*The picture looks a little odd because I "colored" over Jack's underwear to accomplish David's request that I not post any more pictures of Jack in his underwear on the internet. I'm sure when Jack is...

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Found the "Surgery T-shirt"

Well, I guess I'm about as mentally ready as I'm going to get for Jack's upcoming cranial vault. My "surgery t-shirt" has been hiding in my closet for quite some time now. I have worn this t-shirt for...

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On Our Way

We've decided to drive this time so we're on our way to Dallas. I don't remember ever being so worried about an upcoming surgery. I've cried quite a bit the last few days. I cry during my prayers even...

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Rarin' to Go

We spent the night in Louisiana. We got a rather late start yesterday so we just drove and drove until none of us could stand "Go hospital" any longer. I'm fairly certain that "Go hospital" way...

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Texas

We've reached the great state of Texas. Jack is in a great mood and is helping to keep our spirits up.Sent from my Verizon Wireless BlackBerry

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Dallas Deliberations

Traveling for medical care adds a layer of complication and stress that nobody needs. When you travel for medical care, everything has to be coordinated just right. You can't just come back another day...

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On His Way

God continues to hold Jack in his hands. We, however, had to let go and allow the OR staff, anesthesiology, and our surgeons take Jack. The waiting begins as we hold on to the promise that God has...

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Calling All Prayer Warriors

When Dr. Fearon opened the space at the front of Jack's head, he washed out the frontal sinuses and created a flap between the sinuses and the new space. There is a danger of infection if bacteria...

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Praise God!

It's fairly early in the night so far but God is at work. David and I are sitting here amazed as Jack breathes slowly and evenly. He begins to obstruct from time to time but we reposition him, do a...

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Quiet Night, All is Calm

I sit here continually amazed. God is great. God is good. I am thanking here for a good night's rest for my wonderful son. I am praising him for Jack breathing well without the Bipap. I thought we...

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Roller Coaster

The arterial line is out. The catheter is out. The oxygen is off. His blood pressure is fine but we're hanging out in the ICU a few more hours because it dropped a bit this morning. They think it was...

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Dr. Swift Said Wake Him Up

Dr. Swift came by and he does not want to see a sleepy Jack. Dr. Swift wants to see Jack returning to his normal activity. We are working on Project Wake Him up!Our nurse has gone to get a wagon. Jack...

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Operation Wake Up has hit a Stall

Jack rode around in the wagon a bit but he was falling asleep. So we put his shoes on (IV hopefully will still work) and got him to walk up and down the hall 1 1/2 times. Then he pretty much begged to...

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My Pretty One (Finally) Sleeps

It was quite a restless night. I do not want to declare that his days and nights are backwards because I don't want it to be true. Dave and I took turns lying beside him all night. He just did not...

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First Shampoo Done!

Our craniofacial friends who treat with Dr. Fearon will recognize this milestone. The first shampoo is a big deal because until the first shampoo it's hard to get really cleaned up. We opted to do the...

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Can't Let a Little Thing like Vision Stop Play

After the wagon ride, we both took a gloriously long nap. Jack woke up before I did and has been trying a bit more to play some of his ipad games between watching his favorite episode of Sesame Street...

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